It's Invading My Circle of Friends

Today I got a phone call from a good friend I have known for 13 years.  She is having breast issues.  This is the second call I have gotten from a friend in the past 6 months regarding abnormal mammograms.   I feel like the threat of breast cancer is now invading my circle of friends.  I know that over a woman's lifetime, she has a 1 in 8 chance of getting breast cancer, but I just don't want to watch friends go through this nightmare too.  I thought I was the 1 in 8 in my group.  This is so frustrating and scary. 

At this point neither friend has been diagnosed with breast cancer, but one friend is now at a 4 to 5 times greater risk of developing breast cancer with the pathology from her biopsy.  The other friend is on a six month follow up for her abnormal mammogram and has not had a biopsy yet. 

I have lots of friends that have or have had breast cancer, but these are women I have met through my own journey of dealing with breast cancer.   My path crossed with their paths because of our breast cancer.  I just didn't expect other dear friends that are healthy to have to deal with this. 

I am very grateful that at this point neither friend has been officially diagnosed, but I am scared for them both.  I am scared for my other friends, my sister, my nieces and my friend's daughters.  Breast cancer is a horrible disease that reeks havoc on normal, healthy women.  I want so badly for them to find a cure.

In addition to finding a cure, I want women to realize that this CAN happen to you.  I never thought it could happen to me, but it did.  Breast cancer does not discriminate.  If you are reading this, please do monthly self breast exams in addition to getting regular mammograms.  Don't have a false sense of security with a clear mammogram either as some tumors are not seen on mammograms for women that have dense breast tissue (that happened to me - a clear mammogram months before I found a 1 cm lump that had been there when I had the mammogram).   Do everything you can to detect anything abnormal early so you have choices.

At this point I have started to think of breast cancer as more of a chronic disease .  I will have to deal with it for the rest of my life even if I don't have active disease.  I just keep hoping that I can continue with oral medications and when my 5 years of that is finished there will be new options and research available to lead me to other ways to reduce my risk of recurrence. 

Tonight I will pray for my dear friends dealing with the fear of breast cancer and my other breast cancer sisters.  I will again be fundraising this fall to help find a cure.  There just has to be a cure out there somewhere.

Maybe God Is Helping Me Out

Over the past few years I have had plenty of time to think about breast cancer and wonder how come I got it.  I have learned that I will never really understand how or why I won the breast cancer lottery, so I have tried very hard to let those questions go from my mind.  Most of the time I do pretty good with this, but at other times I hear those questions in my head.  At some points it has challenged my faith in God. 

When I was diagnosed I kept thinking "why did God let this happen to me?"  I also wondered if I was a bad person or had done something horrible to deserve this (the guilt comes along with being raised Catholic I guess!).  Then I began to think that maybe God had nothing to do with me getting breast cancer.  Maybe it was going to happen no matter what and there wasn't anyone that could stop it - not even God.  I think of all of the babies born sick or young children getting bad illnesses and think that God would not just "let" that happen.  I have always had faith in God.  Why was breast cancer making me question my faith? 

One day I had a revelation.  I began to think that maybe I was looking at it all wrong, and that maybe God was there to help me out.  For whatever reason, I did find the lump in my breast even when the mammogram did not find it.  I did get diagnosed with breast cancer, but it was Stage 1 breast cancer.  While getting breast cancer at any stage is difficult, I realize how fortunate I am to have been diagnosed in an early stage.  I also began to think that being diagnosed with hormone receptor positive  and HER2 negative breast cancer was also a blessing since there are more treatments available for this type of breast cancer.  Again, maybe that is what God "could" do to help me out.

Over two and a half years being diagnosed, I have come to accept so many things in my life that I never thought I would have to deal with.  I am glad that I have come to accept that God was there for me and he is watching over me.  I am grateful for every day I have to spend with my family and those I love.  I am thankful for feeling so good.  For these things, I thank God and continue to have faith.

Surgery Was A Breeze

Yesterday I had the oophorectomy surgery (ovary removal).  It's funny but after all I have been through I was not even nervous at all.  It seemed like no big deal.  Normally surgery would freak me out but after having breast cancer and all that comes with it, other things don't seem like such a big deal. 

My husband took me to surgery yesterday.  The nursing staff was great and once they put medication in my IV I didn't remember a thing.  I didn't even remember being wheeled into to operating room.  Next thing I remember I was waking up.  I didn't really have pain either.   That was a surprise!

My biggest thrill was not having nausea and vomiting after surgery.  Usually I get super sick from anesthesia and throw up for a whole day.  It was a pleasant surprise to feel OK after surgery and not feel like puking!  That put a smile on my face!

I was home from the hospital by 11:30am and spent the afternoon chilling out on my couch.  I napped off and on and woke up feeling rested this morning.  I have not had to take any pain medication either. I could not have asked for a better surgery experience!  I am glad it's over with though!

More Surgery...This is Nothing!

Well I have still been busy living life and loving it so I have not posted much.  I am doing OK but as the title says, I need more surgery.  I need to have my ovaries out....joy hu?  There is a cyst that just won't go away and my doctors want to be very thorough with things given my history with breast cancer so out comes the ovary.  Since I am having one ovary out and estrogen is not my friend, I decided to have both ovaries out to further reduce any estrogen in my body. 

What's funny is having surgery doesn't even scare me.  I guess you put it all in perspective with what I have already been through, and this means a laproscopic oophrectomy seems like nothing.  My surgery is next month and the recovery should be pretty easy from what I am told. 

So I got excited that I would have less estrogen in my body since my breast cancer was fueled by hormones but then my medical oncologist took the wind out of my sails.  He ordered a DEXA scan to get a baseline on my bone density.  The results indicated I have osteopenia which is a precursor for osteoporosis.  I am only 47 years old!  That was a huge shock.  I already exercise, maintain a low body weight, eat healthy, don't smoke, avoid processed foods, take calcium, etc.....how the heck did I get osteopenia?  I guess this will be another question I will never know the answer to. 

Now that I have osteopenia, I will most likely not be able to switch to an aromatase inhibitor (which is what post menopausal breast cancer patients take if their tumor was estrogen dependent) which offers the best protection from recurrence.  The aromatase inhibitors can directly affect bone density and since I am at risk already, this is probably not the best choice for me.  I guess I may stay on tamoxifen which does not effect bone density but is a little less effective in post menopausal women.  This is so frustrating.

I am off to see an endocrinologist to discuss my bone density issues and see what they recommend.  Looks like I will be put on some type of medication to help with my bone density.  I feel like an old lady!  I take pills daily and go to the doctor all the time.  So now I have a whole list of doctors:  medical oncologist, plastic surgeon, internist, gynecologist and endocrinologist. I also have an orthopedic sports medicine doctor and am doing some physical therapy for a hip injury a few times a week.  Crazy!  Isn't this what old ladies do???  LOL!

Oh well.  Either way, I am thankful for the overall health and life I have now.  I will continue to do what I can to stay healthy and hopefully live a long life.  Each day is a gift and can be filled with joy if you let it. 

Just Busy Living Life

I feel bad that I have not posted in a long time, but as the title of this post says "I have just been busy living life".  That's a good thing right?  I guess what I mean by that is I have not had as much time or focus on thinking about breast cancer as much as I use to.  I have been very actively starting my art business (that was my 2011 New Year's Resolution - yikes!) that I have been behind on.  I am also working on decorating our new home.  I volunteer at my son's school art class and teach fitness programs for the kids sometimes after school.  I am on the PTO (never thought I would say that!) and help raise money for the school.  In addition, I continue to help newly diagnosed breast cancer patients by talking to them and offering encouragement (I talked to three newly diagnosed women just this past week!).  I also write letters new newly diagnosed women through Girls Love Mail (link at bottom of my blog).

As I think about all that has transpired in the past two years since my diagnosis, it is a lot to take in.  So much has happened at times it's hard to comprehend.  For me though, I continue to try to move forward in my life in a healthy, positive way.  I am to a place where breast cancer DOES NOT define me.  It is something that happened to me - but it is not who I am.  I really believe that now.  I don't know when I got here in my thoughts, but it is a GOOD feeling.

I know I will never truly be free from breast cancer.  It will always be a part of who I am, but as time goes on it  becomes a smaller and smaller part of me.  For that I am grateful.  Life is amazing and I am so happy.  I won't let breast cancer rob me of that every day.  I won't be defined by breast cancer or the fear that comes with it.  I just won't!  I guess that is why I don't post as much anymore.  I am just busy living life! I hope that anyone newly diagnosed or at the beginning of the breast cancer road holds on to this post and keeps the faith that they will feel this way too one day.

It's Been Two Years

As I looked at the calendar today I realized that tomorrow it will be exactly two years since the whole breast cancer thing started.  Two years ago they told me "it no longer looks consistent with something benign".  I can still remember the exact words.  I can still remember that beautiful, clear, sunny December day when everything changed.  Sometimes I can't believe it all happened and other times it seems so real.

When I look at my life now, it could not be any more different than it was when I was diagnosed.  If you told me two years ago that I would quite my career, stay home, do volunteer work and be a soccer mom I would have laughed.  Now, that is my reality.  It's a far cry from the type A, career driven working mom I was before.

The other day I was driving in my car and thinking about my life now and just thinking how incredibly happy I am.  I love my new life.  I feel such joy everyday.  I feel like a completely different person than the woman I was before breast cancer.  I am glad that I get to experience this level of joy in my life, but feel sad that it took breast cancer to get here.  I know I can't change that so I don't dwell on it, but I just wish I could have gotten here a different way.

The other thing I thought about is "will this all come crashing down"?  Life feels so good now....will something come along and destroy that?  I know that sounds negative, but life seems too good to be true at times.  That scares me.

As I think about how I felt at the beginning of my diagnosis, how I felt one year after diagnosis and how I feel now I realize just how far I have come.  I have found a place in my life where I believe in myself and don't live in fear every minute of every day.  I am focusing on enjoying my life.  I am not focusing on breast cancer.  I have learned so much from my experience that I continue to try to support those that are behind me on the breast cancer road.  I want to offer them a bit of hope when things seem so hopeless, just as others did for me.

Two years after my diagnosis, I have to say that life is great.  I am happy.  I feel healthy.  I continue to pray for a cure for breast cancer and especially for those not as fortunate.  Please God, let there be a cure.

Deja Vu

Yes, it has been a long time since I posted.  I guess the more time that goes by after diagnosis and treatment, the more "normal" life becomes again.  That is a good thing considering how difficult it is to walk through all the steps involved with breast cancer.  I remember it being so "all consuming" and such a part of EVERY minute of my day. I am glad that as time has gone on, it has become less consuming and a much smaller part of my day.

We just returned from our yearly Bahamas vacation.  We have gone the past several years, but didn't go last year because of my treatment and our move out of state.  The last time we went was shortly before I was diagnosed with breast cancer.  When I would look at the photos from that trip before my diagnosis, I just got sad because life was "normal" back then.  Now everything is different.  I mourn living in a care-free way and not worrying about cancer.  Maybe I was just naive back then and thought I was invincible or something.  Either way, I feel sad that breast cancer has changed my life forever.

When we went on our trip last week, it was like a big "deja vu".  I felt so much more normal.  I felt like it was just a "normal" vacation.  I can't say that I never thought about breast cancer, but I can say that I didn't think about it all the time.  Strangely, it felt like my old life and our previous trips to the Bahamas.  That was refreshing for a change!

The other thing I noticed is how my perspective on things has changed.  Maybe it's the whole breast cancer experience, or perhaps the Effexor I take, but I am so much more laid back about things than I use to be.  Hurricane Sandy hit the Bahamas while we were there and I just went with the flow.  I am not sure the old me would have done that.  My poor husband was stressed and complaining a lot about the storm ruining our trip.  I kept saying "go with it...you can't change it, so let's have some fun spending time together!"  I had to keep reminding him of that for those few days.  That was strange to hear myself (former "type A", high strung person) telling him to chill out!  That was not a "deja vu" moment by any means, but it was nice to not worry about it.  I guess given what I have been through, hurricane Sandy is nothing!

I hope anyone newly diagnosed reading this finds hope in the old saying that "in time things will get better", because it's true.  I never thought I would be able to say that, but here I am putting it in print.  I hope time continues to allow me more and more "normal" life experiences and much less time spent thinking about breast cancer.  Life IS going on every day and any time I spend worrying about all of this is time wasted.  I have to remember that in those little moments of breast cancer panic.  I hope to continue to have "deja vu" experiences that remind me of my pre-breast cancer life.