So I finally got up the nerve to wash my hair today. I have followed the directions and have not washed since last Saturday. Since some of the shedding started on Wednesday when I had my second chemo, I was petrified to see what would happen when I washed my hair (since it has still been shedding since Wednesday).
I started to gently comb my hair from the bottom and hold the top so I would not pull on it. I figured that if I combed it a little before it would be less tangled during washing. The combing went fine and not much hair came out - maybe a little more than normal but not bad. Then I began to wet my hair with the cool water and started seeing hairs drop. I continued along slowly and carefully bent over the very large and oh so very white tub (making every hair stand out like a sore thumb) and watched each hair fall....many hairs fall. I washed and conditioned a little and rinsed...more hair. It has been horrible all morning. I just looked in the mirror and tears began to fall.
I know the "shedding" is normal with doing the cold caps, but I kept having hope maybe it would not happen at all since it has been over 3 weeks since my first chemo and there had been no hair loss. Ugh. I just sat there with wet hair....letting it hang and dry. I was too afraid to touch it. It doesn't look any different to me (other than not dried and styled like I would). I did not notice any bald spots or clumps coming out which is good news, but I can't get the image of all that hair coming out today in the tub! This is the first time I really feel a strong panicked feeling about my hair since starting this process. I have been positive and have said over and over again that it will work and I will keep my hair. I am starting to just get a bit nervous now.
Others that have done the cold caps have experienced the same exact shedding and worries and still went through chemo and finished with hair. I have to try to hold on to that and their words of wisdom and experience that this will be OK. I guess I have just tried to be so positive and have not let a negative thought enter my mind in the past few weeks since starting chemo it is just hitting me today. I hate breast cancer.
I have to find a way to put this into some kind of perspective. Normally I would wash my hair daily. I wonder how much hair I would lose on a daily basis doing that? I have not washed my hair in an entire week (following the protocol for Cold Caps) and had some shedding in the past few days. I wonder if I shed more because it was all at once (a week's worth of shed without washing)? Let's face it, I have been really gentle with my hair and have barely even combed it much in the past week. That plus the chemo shed may make this normal for cold caps. I sure hope so. I just hope the shedding period stops soon. I don't know what will happen if this continues for a few more days. That will put me over the edge for sure!
For now it looks normal (other than not styled my normal way) and does not look thin. I will try to remember that today. I will tell myself that over and over again today.
As far as post chemo this week, I am doing better than I thought. I had chemo on Wednesday and felt fine on Thursday and Friday. I exercised well both days too which felt good. Yesterday in the afternoon I started feeling a little foggy in the head like last time and started with some body aches. I have been taking Aleve and Claritin this time around to help with side effects and I do feel like the side effects are a bit less than last time which is good news. I do have a little soreness in my neck, base of skull, ribs and jaw, but it is minimal and definitely less than last time. I slept OK last night - not great but better than some nights. I have been really hungry the past two days. All I want is carbs.....lots of them too! I have been trying to focus on drinking a lot of water to flush the chemo out of my body. I just hope the bone pain does not hit again this time around. We will see.
I am a wife, a mom, a sister, a daughter, a neice, an aunt and a friend. I never thought I would hear the words "It's not good. There are cancer cells". December 8, 2010 changed my life forever. This is my scary, long, enlightening journey through breast cancer. I hope that my words help others facing a similar situation or those that love someone going through breast cancer. I don't know where the road in front of me leads, but I know that Breast Cancer won't define me.
Quote:
"Don't spend time worrying about how you are going to die. Worry about how you are going to live today"
Saturday, March 26, 2011
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